Wednesday, February 13, 2013

Our Lyme Story - Part 2


This is a continuation of our Lyme Story - see Part 1 for the beginning.

Tim has been better and worse throughout his 4+ years of being sick, but he is currently in a very bad spot. He is basically back to where he was in the beginning, unable to get out of bed. Thankfully, he now has the option to work from home, so that is what he does currently. His boss has been great in working around his limitations. He will be getting another PICC in the next few weeks, and we are hoping and praying that that will help him see some improvement. He has been in a free-fall with his health lately and we are anxious to get him back on track.

I didn't have a lot of bad symptoms for the first couple years I was sick. That was when I was pregnant, and it is said that often pregnant women get a reprieve from symptoms due to how the hormones take over the body. I hit a wall in April of 2012, and last summer was really rough for me. I got a PICC this past fall, and I am currently in month 3 of my IV treatment. The beginning was very difficult, but I am so happy to be seeing some slow improvement. The projected length of my IV treatment is currently around 9 months.

Our son Andrew just recently stopped treatment after 2 years. He seems to be doing better, but only time will tell. We are hopeful that he can put all of this past him and focus on growing up like any normal healthy boy.

The newest development in our continuing story is the we are currently living in a hotel after a pipe caused water damage in our home. We are in the midst of an insurance claim, and we're anxious to get back into our home. We have also recently discovered that our home had a severe mold problem. Given the strong correlation between Lyme and mold toxins, it is very likely that that is a big part why Tim especially has been experiencing much worse health problems lately. We have been able to have that taken care of while we were out of the house anyway, so we are hopeful that that will also help Tim as well as the rest of us get back to better health.

Thank you for your support of our family during this trial. We appreciate it and will do our best to keep you up to date on what is going on with us.

-Tim, Rachel, Sarah (age 7.5), Andrew (age 5), and Jonathan (age 1.5)

UPDATE 4/11/13: A lot has changed since I originally wrote this post 2 months ago.  Tim got a PICC in February and had a rough start (read parts of it here and here).  Thankfully he has not had any more complications, but he has not seen much improvement yet, so we are pretty bummed about that.

At the end of February we were able to get back into our house after the water incident.  It is so good to be home.  We are still dealing with the insurance company, bank and contractors to get all the loose ends tied up, but that is almost behind us.

In March, Andrew broke his leg, so that has been keeping us busy.  He had a full leg cast at first, but he currently has a cast up to his knee.  That makes it a lot easier on me since I have to carry him almost everywhere.  He is able to use a wheel chair when we leave the house.

Also in March, Tim lost his job.  Even though we kind of saw it coming, it was still a huge blow.  As I mentioned in the original post, his boss was so accommodating in allowing him to work from home so it really was a perfect situation.  At this point, we're not sure what we're going to do since he's much too sick to interview, let alone hold down a job in an office.

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